This study is currently not recruiting participants.

Development of a Neurofibromatosis Specific Quality of Life Tool

Investigating the Impact of Neurofibromatosis on Quality of Life

Not Recruiting
14 years - 100 years
All
Phase N/A
1 Location

Brief description of study.

The purpose of this study is to understand how Neurofibromatosis (NF) affects health and wellbeing so that we may develop a survey that measures the impact of NF on quality of life.

Detailed description of study

The purpose of this study is to understand how Neurofibromatosis (NF) affects health and wellbeing so that we may develop a survey that measures the impact of NF on quality of life.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Neurofibromatosis
  • Age: 14 years - 100 years
  • Gender: All

This study investigates how Neurofibromatosis (NF) affects health and wellbeing. Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue, which can lead to various health issues.

Participants will be involved in procedures to help develop a survey that measures how NF impacts quality of life. This survey will be used to better understand the challenges faced by individuals with NF.

  • Who can participate: The study is open to individuals diagnosed with Neurofibromatosis. There are no age restrictions. Participants should be willing to share their experiences related to health and wellbeing.
  • Study details: Participants will be asked to provide information about their health and wellbeing to assist in creating a survey. This survey aims to measure the impact of NF on their quality of life.
Updated on 19 Feb 2024. Study ID: 1011003059

Interested in the study?

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