This study is currently not recruiting participants.

Designing with People with Rare Diseases

Study on Social Platform Design for Rare Disease Support

Not Recruiting
100 years or below
All
Phase N/A
1 Location

Brief description of study.

The purpose of this study is to obtain feedback from people with rare diseases on design ideas for a social platform to facilitate sharing of information and arranging support from caregivers.

Detailed description of study

The purpose of this study is to obtain feedback from people with rare diseases on design ideas for a social platform to facilitate sharing of information and arranging support from caregivers.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: Rare Disease
  • Age: 100 years or below
  • Gender: All

The purpose of this study is to gather feedback from individuals with rare diseases on design ideas for a social platform. This platform aims to help users share information and arrange support from caregivers. Rare diseases are conditions that affect a small percentage of the population, making it challenging to find resources and support.

Participants will be asked to provide their opinions on various design concepts for the platform. This feedback will be used to improve the platform's usability and effectiveness in connecting patients with caregivers. The study will involve reviewing design proposals and offering suggestions for enhancements.

  • Who can participate: Participants should have a rare disease. There are no age restrictions or other specific eligibility criteria provided.
  • Study details: Participants will review and provide feedback on design ideas for a social platform. They will share their opinions to help improve the platform's design.
Updated on 19 Feb 2024. Study ID: 1412065553

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