DEcisions about Cancer screening in Alzheimer's Disease (DECAD)

Investigating Educational Pamphlets for Caregivers of Women with Dementia (a condition affecting memory and thinking abilities)

DEcisions about Cancer screening in Alzheimer's Disease (DECAD)
Recruiting
18 years - 100 years
All
Phase N/A
1 Location

Brief description of study.

The purpose of this study is to gain an understanding about the use of educational pamphlets by caregivers of women with dementia. This study will randomly assign caregivers to receive one of two different educational pamphlets and is designed to gather information on how caregivers make health care decisions for someone with dementia.

Detailed description of study

The DECAD study is designed to support caregivers of women with Alzheimer's disease who are 75 years of age or older. We are hoping to learn how to better assist these caregivers in making medical decisions for their loved one.
 
The study involves:

Three caregiver interviews (in person or via phone). We will ask questions about caregiving and making medical decisions. To compensate your time you will receive a $25 Kroger gift card after each interview.


Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: care giver,Dementia,Medical Decision Making,Family Member Support,Caregiving,Caregiver Support,family member,Breast Cancer,Mammography,Alzheimer's disease
  • Age: 18 years - 100 years
  • Gender: All

Caregiver Inclusion Criteria:
1. Self identify as a caregiver for a person with Alzheimer's disease or related dementias
2. be 18 years of age or older,
3. must have a telephone
4. be English speaking

Patient Inclusion Criteria:
1. Women
2. 75 or older 
3. diagnosis of Alzheimer's disease or related dementias
4. eligible for breast cancer screening (At least one mammogram in the past five years)
5. Primary care visit scheduled in the next 12 months
 
Caregiver Exclusion Criteria:
1. Made a decision that the patient will stop getting mammograms
2. Caregiver is a non-family member who is not a legal Healthcare Power of Attorney
3. Has a diagnosis of AD or has a mental illness such as bipolar or schizophrenia
4. Less than a 7th grade education
 
Patient Exclusion Criteria:
1.Permanent resident of a nursing facility
2.Had a mammogram in the past 9 months
3.Primary care visit scheduled is the first visit with the PCP
4.Made a decision to stop getting mammograms
5.History of breast cancer or other cancer within the past 5 years
6.Has mild cognitive impairment or mental illness such as bipolar or schizophrenia

Updated on 19 Feb 2024. Study ID: 1501278953

This study investigates how educational pamphlets are used by caregivers of women with dementia. It aims to understand how these caregivers make healthcare decisions for their loved ones. Caregivers will be randomly assigned to receive one of two different pamphlets to see how these materials might influence decision-making.

Participants in the study will take part in three interviews, either in person or over the phone. During these interviews, caregivers will be asked questions about their experiences in caregiving and making medical decisions. Participants will receive a $25 gift card for each interview completed.

  • Who can participate: Caregivers aged 18 or older who speak English and have a telephone can participate if they care for a woman aged 75 or older with Alzheimer's disease or related dementias, and the patient is eligible for breast cancer screening with a primary care visit scheduled.
  • Study details: Participants will be interviewed three times and asked about caregiving and medical decision-making. They will receive a $25 gift card after each interview.

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