Spina Bifida Surgical Communication

Investigating Communication Methods for Surgeries Related to Spina Bifida, a Spinal Condition

Spina Bifida Surgical Communication
Recruiting
100 years or below
All
Phase N/A
1 Location

Brief description of study.

We will be using novel qualitative methods for patient engagement (i.e., patient-centered design research methodology) to explore and refine methods of communicating spina bifida-related surgical procedures to patients in a way that they can use to communicate with providers.

Detailed description of study

We will be using novel qualitative methods for patient engagement (i.e., patient-centered design research methodology) to explore and refine methods of communicating spina bifida-related surgical procedures to patients in a way that they can use to communicate with providers.

Eligibility of study

You may be eligible for this study if you meet the following criteria:

  • Conditions: spina bifida
  • Age: 100 years or below
  • Gender: All


Updated on 19 Feb 2024. Study ID: 1709115138

This study investigates methods to improve how information about spina bifida-related surgeries is shared with patients. Spina bifida is a condition where the spine does not form properly, and it can lead to various health issues. The study aims to find better ways for patients to understand and communicate surgical information with their healthcare providers.

Participants in this study will be involved in patient-centered design research. This means they will help develop and test new ways to share surgical information effectively. The study uses qualitative methods, which focus on gathering detailed feedback from participants to refine communication strategies.

  • Who can participate: Eligibility criteria include individuals diagnosed with spina bifida and aged 18 and over.
  • Study details: Participants will engage in activities that help develop investigational communication methods for surgical procedures related to spina bifida. They will provide feedback on these methods to ensure they are effective.

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